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Sun Mar 14 1:18 pm  #911


Re: Good Morning

I found in Cornwall if they know there's a relative who can look after the person then they let you get on with it and they are very one sided in that so you have to think about how it would be for you to care for him forever until the inevitable happens and how you would feel and then just stand your ground and say there's no way you can cope anymore as you feel as if you will have a breakdown. It's only then they seem to take notice. As Starry has said it's different all over the country so I can only speak as I found for Cornwall, and others I've spoken to since had said if only they'd been warned and refused to have their relative home.

In actual fact you are under no obligation at all to accept a relative back that has had to go into hospital or care, none whatsoever. A little known fact that had I known at the time I would never have had my brother here to look after him in the first place and would have stuck out for the care package. But I didnt know and I felt dreadful doing what I had to do to him to get him into a care home. Infact, I still feel so guilty about it, but I know if I'd given in and kept him here I'd have been no good to him as I would have been a wreck. 

It shouldnt be like this for people, the person they love should be taken into care and there should be more support for the relatives, because they too need help in these situations. They don't want to be bullied into taking a relative back into their home and made to feel guilty if they refuse. But that's how it is, so being forewarned is all we can do for others. Once my brother went into the nursing home I got no support at all, not that I had any before when he was here or when he was in his own home. 

They way they try to get out of it is offering a place not in your own town, Nigel had to go to Lostwithiel, but there was the opportunity that he could be transferred to Bodmin when a place became available, but sadly he didnt live that long. 

Carol's also right too, as hard as it may feel, you have to think of your own health and wellbeing, something that's not easy when you've been caring for someone else for so long and putting your own needs after theirs. But hubby's condition is only going to get worse as you know and thats going to take it's toll on you if he's at home. xxxx 


If walking was good for you postmen would be immortal
 

Sun Mar 14 8:54 pm  #912


Re: Good Morning

Thank you all for your advice.

I've got the team visiting the house tomorrow to check it is suitable for hubby should be return. It will be interesting to see what they look at.I know when I asked for respite the first thing they said was there were no beds in Cornwall  and I said I don't mind where it is
 


xx Diane 
 

Mon Mar 15 8:26 am  #913


Re: Good Morning

Good morning ladies, another dry day thank goodness. Got a couple of masks to make today for an order going to Oregon, USA. I've sent quite a few to the States.  Then a couple more to make and I can put the new summer ones on the website. I'm a bit behind as I had a lot of other work to do at the w/end which held me up. 

Had a terrible night last night, went to be at 11, early for me, woke up at 2.30am. Dozed off and woke up again at 4am. Then couldnt get back to sleep properly, dozing in and out of sleep. My thoughts were all muddled too, couldn't seem to think straight it was a bit scarey to be honest. But the thoughts have cleared this morning but I feel all wobbly and light headed, I'm putting the wobbly down to lack of sleep though. Hopefully it'll wear off during the day.

Lily seems a bit better today, she's hardly eaten anything all w/end which isn't a bad thing at least she's not got the squits now. She did eat her breakfast this morning, but I only gave her a tiny amount. She looks bright enough in herself. It's hard to tell with a cat, moreso than a dog. Cat's hide things so well. 

Good luck today with the inspection Diane. They'll be doing a risk assessment probably. They'll suggest all sorts of things to make it suitable, when it really won't be. Remember you dont want respite, what you want is not having him back in the house because you can't cope anymore. They have beds in care homes and nursing homes, they just tell you they don't. They have to try really hard to avoid finding him a place and palming off the responsibility onto you. You could have a word with your son before they arrive and get him to confirm what a drain it is on you and how it affects your physical and mental health. 

Enjoy your day everyone. 


If walking was good for you postmen would be immortal
     Thread Starter
 

Mon Mar 15 9:42 am  #914


Re: Good Morning

Morning everyone 

Dry but cloudy and feeling warmer 

Be interesting to see what today brings


xx Diane 
 

Mon Mar 15 3:14 pm  #915


Re: Good Morning

Good Morning, a sunny day here and quite mild.  Gordon had a hospital appointment, so we got to go out this morning. I was amazed at how quiet it was on the road. Sally, my shopping lady, said they were all in the supermarkets. ASDA was packed, as was TESCO.
 

 

Tue Mar 16 11:50 am  #916


Re: Good Morning

Good Morning all. I was going to do some washing and line dry it. When I got up it was dull and grey. Typically the sun has now come out and the washing is not done. It can't be tumble dried so I'll have to leave it now until Thursday. I'm sure I'll find something else to do.  There is still so much to sort out but I'll need help and Gordon isn't interested. He prefers to watch TV or sleep. Hopefully, if he sees me struggling he might stir his stumps.

 

Wed Mar 17 7:42 am  #917


Re: Good Morning

Good morning ladies, I didnt get time to come on here yesterday as I had to get those masks done to be collected by the postie today, they're off the the States. I'll be uploading the pics of the summer designs to the shop today Carol so will send a pm when they're up there.

Another nice dry day here, the mower's been cutting the grass for the last few days so it's looking nice and green and short, and flat, only when you walk on it you realise its like the surface of the moon. lol Not sure when the men are coming to start the work on the soakaways and drainage trenches, it's supposed to be soon and they will send either a text or email letting me know the exact date. 

Felt quite weird the last couple of days, fuzzy light headed, following on from the other night when it started. So have been drinking extra water incase I'm not drinking enough, can't think what it can be but hope it goes soon. 

Well done on painting the wall Starry, you'll soon be sitting out on that patio in the summer. Carol isn't that just typical, I was going to do some washing the other day and got it loaded in the machine but then the weather changed, then no sooner had it gone in the drier the bloomin sun came out. 

Diane, how did you get on yesterday? I hope it was a good outcome for you.  


If walking was good for you postmen would be immortal
     Thread Starter
 

Wed Mar 17 9:40 am  #918


Re: Good Morning

Good morning everyone.

Its a lovely bright day here.

I meant to post how the day meant - but - you'll see later!!

They measured all the furniture height, bed height, all the steps we've got and heard what I said about the shower being extremely difficult to help someone to shower and measured the bath too.

They asked again what I was thinking and I emphasised the no particularly as I said I didn't feel I would get enough support in a care package. They did ask what I wanted but didn't say what was available. I did say I'd been asking for help for much too long and none was forthcoming and I wasn't going back to that situation again. I also said I haven't seen hubby for two weeks now and don't know how he has declined in that time as well. I asked about the Thursday meeting and they said it was an interim meeting to let me know how things were going so far.

Paul and Hannah came over Tuesday night and slept here and it was nice to have some company then when I went for a shower I slipped and fell and hurt myself good and proper. They obviously heard the thump and came up to see if I was alright. I'm mumbling alright ,,,  laying screwed up in the bottom of the shower with the water on not wanting them to come in while I had no clothes on. So I managed to roll over ... the water helped, and crawl out, grab a towel and sit on the loo.  I'd hurt my foot, knee and nip and felt sick. Waited till I felt a bit better then had a shower. I said to Paul I think we both need a care home and now there's something else for you to worry about!!!  I kept up with painkillers and hobbled round the house. I felt a lot more comfortable in the afternoon then it started again at night. Both ankles were swollen and I'd obviously caught my arm too. Had a reasonable night and got up to go to the loo not too badly then at six I woke up hurting, so got up had a warm drink and some painkillers then back to bed. I've got a nice bruise on my hip but I've come out of it reasonably well.  Honestly. You couldn't make it up 


xx Diane 
 

Wed Mar 17 11:44 am  #919


Re: Good Morning

Oh, Bless you, Diane. It looks like you got away with bruises and a thorough shaking up. I suggest that you ring social services and tell them you've had a very bad fall, can barely move, and are in too much pain to attend their meeting. It might make them realise that you've got problems of your own and that your situation has got worse.

Starry, the seagulls used to wake me up at the caravan, especially when they landed on the caravan roof.

Hazel, I'll have a look at the masks and choose mine. I'll pm you about Gordon's. I hope you're feeling better today. 
 

Last edited by Annie (Wed Mar 17 11:52 am)

 

Thu Mar 18 4:28 pm  #920


Re: Good Morning

The meeting was a bit of a damp squib. We were sitting waiting for the email link at 2 and nothing arrived. At 2.30 I phoned the ward and the nurse went to find out. The ward doctor came onto the phone and apologised that she was useless at technology and was unable to link us in. So she told us what had been discussed. They've taken him off a couple of his medications and will be trying melatonin for sleep next before moving onto heavy drugs so it sounds like he's still not sleeping.  She said we'd been offered a care package but I said we hadn't so that was noted. She said it was notoriously difficult to get night care package so it would be a major consideration in a long term care decision.  So basically that was it. Paul cut the grass for me and sorted out some more rubbish in the garage. We've got a tip run to do but we ran out of time as he took me up to Morrisons to do some shopping. I got some washing out and back in again, had a quick hoover and washed kitchen floor and that will be in for today. 

I've got some lovely bruises but the time between pain killers is pulling out so its obviously getting easier. There wasn't much that I didn't get on the way down. My head escaped but I've seen bruises and scrapes all over. 


xx Diane 
 

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